New Haven, Connecticut · EIN 208963321. Its Form 990-PF says giving is not restricted to organizations picked in advance, which is how a private foundation files that it accepts unsolicited requests. It paid $131.9M across 6 grants in 2025, a median of $10.8M each.
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Straight off Part XV of the return. Where the foundation left a line blank, this says so rather than guessing.
As filed on the Form 990-PF for tax year 2025, IRS filing object id 202610689349100721. Printed word for word, including the entries that only say to see a website or an attachment.
The words that come up most often across the purposes it wrote on its 2025 grants. These are the foundation's own words, not a category we assigned.
All 6 grants paid in 2025, with the purpose the foundation wrote for each.
| # | Recipient | State | Amount | Purpose as filed |
|---|---|---|---|---|
| 1 | Vials of Strensiq Were Distributed | CT | $57,544,344 | PROVIDE ALEXION PRODUCT AT NO CHARGE TO ELIGIBLE PATIENTS WHO ARE UNABLE TO AFFORD THE PRESCRIBED PRODUCT |
| 2 | Vials of Ultomiris Were Distributed | CT | $52,034,549 | PROVIDE ALEXION PRODUCT AT NO CHARGE TO ELIGIBLE PATIENTS WHO ARE UNABLE TO AFFORD THE PRESCRIBED PRODUCT |
| 3 | Vials of Soliris Were Distributed T | CT | $18,133,940 | PROVIDE ALEXION PRODUCT AT NO CHARGE TO ELIGIBLE PATIENTS WHO ARE UNABLE TO AFFORD THE PRESCRIBED PRODUCT |
| 4 | Vials of Koselugo Were Distributed | CT | $3,442,401 | PROVIDE ALEXION PRODUCT AT NO CHARGE TO ELIGIBLE PATIENTS WHO ARE UNABLE TO AFFORD THE PRESCRIBED PRODUCT |
| 5 | Vials of Kanuma Were Distributed to | CT | $581,970 | PROVIDE ALEXION PRODUCT AT NO CHARGE TO ELIGIBLE PATIENTS WHO ARE UNABLE TO AFFORD THE PRESCRIBED PRODUCT |
| 6 | Vials of Voydeya Were Distributed T | CT | $121,176 | PROVIDE ALEXION PRODUCT AT NO CHARGE TO ELIGIBLE PATIENTS WHO ARE UNABLE TO AFFORD THE PRESCRIBED PRODUCT |
| Tax year | Grants | Paid |
|---|---|---|
| 2020 | 4 | $41.3M |
| 2021 | 4 | $55.7M |
| 2022 | 5 | $121.1M |
| 2023 | 5 | $110.2M |
| 2024 | 5 | $144.8M |
| 2025 (partial year) | 6 | $131.9M |
Officers, directors and trustees as filed, with the year of the return they appeared on.
Every figure on this page is that foundation's own latest filed year, which is 2022 or later. This foundation is listed because its Form 990-PF says it does not restrict giving to preselected organizations and it paid at least 5 grants totaling $100K or more that year. Latest-year grants and terms per foundation from IRS 990-PF e-file returns; the newest tax year is partial until the IRS finishes releasing it. Grants are de-duplicated on funder, year, recipient and amount, so identical repeat grants collapse into one and totals can run low. Full method.
Source: IRS Form 990-PF e-file releases (public domain). Analysis: Civly.
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